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January 11, 2008

Rare Neuromuscular Disorder No Hindrance for CrossCountry Cyclist

This is a cool story about a worthy cause.

The Cause? To raise money to find a cure for a rare desease:

Friedreich’s ataxia is a life-shortening, debilitating and rare genetic neurodegenerative disorder. Onset of symptoms usually occurs between the ages of 5 and 15. Symptoms include muscle weakness and loss of coordination in the arms and legs; impairment of vision, hearing and speech; aggressive scoliosis (curvature of the spine); diabetes, and a serious heart condition. Most patients need a wheelchair full-time by their late teens and die as young adults. There is currently no treatment or cure.

January 3, 2008 — Kyle Bryant and Team Ride Ataxia are preparing to begin their second cross-country journey to draw attention and raise research funds to find a cure for the rare neuromuscular disorder Friedreich’s ataxia with which Bryant and other teammates are affected.

The team will begin the ride on March 15, 2008 at the state capitol building in Sacramento, CA and conclude in Las Vegas, NV on March 27, 2008 at the National Ataxia Foundation’s 51st Annual Meeting. It will be a 13-day trip covering 600+ miles.

Check out the Blog linked above, and a short video by Kyle.

The rest of the Press Release can be read at the Blog of Kyle's friend, Bali What?

January 11, 2008 in Cycling News Network | Permalink

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Comments

We're definitely seeing more and more cyclists taking out on the road to support good causes.

I question, which other sport sees such determination bound attitudes?

Posted by: Ron | Jan 16, 2008 8:37:18 PM

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